devondancer update 23 Aug

Lesley is stable still. She is incredibly tired, but there is no possibility that she is giving up now. I have no idea where this tough person came from! We have spent the day listening to music together - beautiful recorder music, which she loves and I have never listened to. She said how lovely it was to listen together, and I felt awful: I am horribly biased about music (I realise that now!) and will normally only listen to classical guitar pieces. Lesley does almost all her listening through headphones, because of my professed dislike of “her music”. No more! “Her music” has gone a long way towards saving her life, and it is something I will now share in willingly.

I have seen the concentration in her face as she lies there and I know how hard she is working on those legs! She knows now that they will work, and she wants it now! If they had let her get up today, she would have been trying to stand! Thank goodness she is not allowed out of bed yet! She knows that she must go slowly and get some strength back, but it is so hard for her. At least at the moment she is literally too exhausted to try, especially as she can’t even sit up! The spirit is willing . . .

She has been seen by the cardiologist again today, as her heart has been so fluttery again. He still feels that there is no permanent damage and that she should be able to exercise and live normally. The only thing she will have to be very careful about is if she is ill: her reactions to both medication and high temperature are abnormal and do put a severe strain on her heart. I think she will cope with that restriction, if she can walk and cycle and dance!

I hope to have more steady progress to report tomorrow.

With many thanks for your continued care and support.

Ro

Sounds like you’re learning some amazing lessons, Roland. What a struggle you two are enduring together!

Susan

You are right! I shall never take her for granted again! She is too precious - I know that now!
Ro

I’m very relieved to hear that her recovery is continuing.

Warm healing thoughts and best wishes,

–James

Now I’ve got the middle of the night terrors! It’s 2230 here, dark and pouring with rain, and I’m at home and Lesley is still fighting. How am I so frightened when she is so strong? I am in pieces tonight: I’m glad I can say that to you without fear. Presumably just reaction and tiredness, but I am frightened tonight. I need daylight and morning. Please keep praying for her - she is so precious to me.
Ro

My friend, you need sleep.

Get off the computer, go to bed.

If you get so exhausted that you are in the hospital yourself, it won’t help her.

Rest.

–James

ya need sleep :slight_smile:

it’s a normal reaction to the stress

yer doin’ fine :smiley:

Thank you all.
It’s morning, and I am coping, and I have had no bad news over night. You were right - I am tired! It flattens your brain, after a while! I shall go in to visit her, tell her to rest, and I shall sleep in the chair. That way we are both helped!
I was sitting at her desk last night and for the first time took proper notice of the jar of whistles that Lesley has made herself. They have improved from the white plastic first attempt, through other plastics to aluminium and brass. And, having blown them, they all sound really good - in tune and with what I (a non-whistler) consider a good tone! How did she manage that? I even managed to play Three Blind Mice! Must stop now, must stop now, must stop now . . .
Thank you my friends. I can cope now.
Roland

May the dawning of this new day bring more light into your hearts and lives.

Poor Roland. I can’t imagine what you must be going through. Wishing you strength and sending you a virtual hug.