Mike, I am happy to talk about continuing with music come what may.
Some of the longer term board members and a number of chatters know that I have young-onset Parkinson’s disease. This is what Michael J Fox has as well. I’m not that young (about Micheal J Fox’s age), but average age at diagnosis is 70. This disorder is characterised by movement problems, stiffness and shaking in particular. As is typical, my case has started on one side of my body, in my case the left. I’m right dominant, so this is a blessing. I also have balance trouble and difficulty initiating movement on the left, and manual dexterity is deteriorating.
Parkinsons is an unusual decline in the neurotransmitter dopamine in one particular area of the brain. It is progressive and although there are some drugs that help the symptomes, there is no cure.
Fighting the decline helps you cope. Music is one of the recommended therapies for hands. Usually they talk about the piano, but I like whistles. When I go to my specialist annually, he always asks why my dexterity is so good compared to others at this stage. Then when I tell him, he always says, “I should get all my patients playing whistles.”
Because of the decline on my left side, half-holing C natural is out of the question and the cross fingerings are slow and awkward for me. When I was looking for a nice whistle a few years ago, Mike Burke offered to make me one with a C nat thumb hole.
My thumb is quite a bit more controllable than my fingers so it allows me to play C nat in tune and fast enough. I still play my other whistles, but I can only use 0xx000 and then only in slower places. I can’t really do rolls on A or B, and some days I can’t cover the holes well enough to play.
I absolutely love playing whistles. I take them with me everywhere and blunder through tunes shamelessly in front of anyone. No one here knows what they are really supposed to sound like, so my low ornament style has no negative reaction. When I’m playing for something important I take extra medication to get loose enough to play.
I’m still getting better at playing, but I really have to fight my way up the down escalator. Sometimes it doesn’t seem fair how easily others play, but I usually don’t dwell on that. I prefer to gloat on being able to learn tunes more easily than some.
MikeR, I’m not one of those great players who have not only overcome an obstacle, but blasted right past, but I am still an intermediate player who has an awful lot of fun. I don’t want any pity posts about this, I’m fine, as those of you who I’ve met in person know. Remember, we are all only temporarily abled. Life is short, play whistles!
— Nancy F